Anyone's dc have funnel chest... have started googling and scared myself silly

(16 Posts)
Slightlypanicked Fri 06-May-16 13:16:23

Dd has a dip in her chest. She had OSA caused by large tonsils that were removed last year and I just thought it was caused by the pressure of her not being able to breathe properly at night. However it hasn't improved since having the tonsils removed and is looking worse as she gets taller and thinner (she is 7).
I have had a Google and so far dd has marfan syndrome and loeys-dietz syndrome according to Google.
Dd has quite big doe eyes and wide set eyes are one of the symptoms of loeys dietz syndrome. She has no other obvious connective tissue problems but now I'm worried.
Will make an appointment with the gp anyway regarding the dip. Am I crackers?

AgathaMystery Fri 06-May-16 13:17:16

Do you mean pectus excavatum?

Slightlypanicked Fri 06-May-16 13:19:05

Yes sorry I forgot the proper name

Slightlypanicked Fri 06-May-16 16:50:53

Anyone?

RumbleMum Fri 06-May-16 16:54:12

A good friend of mine has funnel chest and has no health problems at all.

However, you need to see the GP and step away from Google. I know it's hard to do but try not to get tangled up in those scary disease descriptions before you have a real idea of what, if anything, might be the matter. I say this gently as I know it's easy to worry.

Mov1ngOn Fri 06-May-16 16:55:49

Mine does, and also had sleep apnea, tonsils removed etc.

However are you meaning the sleep apnea or the dipped chest hasn't improved? I didn't expect the dipped chest to improve because of the tonsils coming out.

I've shown various doctors over the years when we've had appointments and none have been concerned in our case.

Slightlypanicked Fri 06-May-16 17:00:05

Sleep apnoea has gone completely. The operation was a complete success. I just suppose I expected the dip would stay the same or begin to grow normally over time but it seems to be getting worse.
Was your dc's dip caused by the sleep apnoea if you don't mind me asking Mov1ng or was it present at birth?
A few doctors have asked about her dipped chest when examining her when we've been in A&E a couple of times but never brought it up as an issue.

TheCrumpettyTree Fri 06-May-16 17:05:38

Well you can have a dipped in chest because of recession which is where you use accessory muscles to help you breathe and is a sign of respiratory distress (which can happen because of sleep apnoea) or you can have pectus excavatum where your chest is just shaped like that.

AgathaMystery Fri 06-May-16 17:07:21

All (& I do mean all) the men on the maternal side of my family have it. So does my DC.

Slightlypanicked Fri 06-May-16 17:11:05

She did breathe all wrong when she had sleep apnoea. Her ribs would flare out and her chest would suck in and her stomach always looked bulbous. Had an absolute nightmare getting ENT to agree to take out her massive tonsils and adenoids. We had a sleep study, endless appointments and in the end I showed our ENT a video of her sleeping, he immediately agreed to have them removed and she was in within a month. It took us 3 years to get them to agree so I think the length of time she was struggling may have caused it. We even ended up in A&E one night because she looked limp and her heart was beating out of rythm (everything turned out to be ok with her heart) only then we're we taken more seriously but they still took some convincing.

nancy75 Fri 06-May-16 17:11:09

My dh has it, no other health problems it's just the way he is. A few years ago he saw a doctor about having it operated on but the op sounded quite big so he decided against it

RhinestoneCowgirl Fri 06-May-16 17:15:14

DD has a noticeable dip in her chest (she is 7). My dad also has it. so I assume it runs in the family.

DD has always been a very noisy and restless sleeper, and it took her until 3 yrs to sleep through the night. She seems otherwise healthy, is growing etc so I suppose it's just how she's built.

Slightlypanicked Fri 06-May-16 17:26:15

Sounds like it's quite common then. I don't know of anyone in our immediate family with it. I have booked a gp appointment but can't get in until early June which isn't helping with the googling grin

AgathaMystery Fri 06-May-16 17:30:13

My brother is the most recent in my family to have the op. He had the Nuss Procedure at Birmingham. The results are amazing.

He had reduced lung capacity, hepatic issues and his heart was quite displaced and slightly rotated - all resolved now. It is a massive operation & you really have to pick & chose your surgeon carefully. Happy to PM about it.

Slightlypanicked Fri 06-May-16 17:34:13

Thanks Agatha that is really helpful. That is my main concern other than that there may be an underlying condition that had caused it. It doesn't seem to bother dd at tge minute but she does get tured easily when running so I was wondering about her lungs.

Slightlypanicked Fri 06-May-16 17:35:37

Sorry I should have read that before I posted. It should read * it doesn't really bother dd at the moment but she does get tired easily*

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