To be furious with the school nurse

[Hedgehog80]

Iam absolutely fuming

Dd2 has various medical conditions, has 1:1 care at school and all going well. Good relationship between us, school and hospital.

The community school nurse paid a visit to school and 'reviewed' all children with medical needs. Fair enough I suppose, didn't think much more of it.
I then got a call from dds hospital as they had been contacted by school nurse with 'concerns'. We cleared it all up and I spoke with the school SENCO who was lovely. Said the nurse had told her 'I don't know much about these conditions but I want copies of this child's records to show my supervisor' the school refused. She them apparently wanted to see dd but they also refused that.

I thought that was the end of it-them I get a GP letter calling us in to discuss these same 'concerns' so I called the GP and explained and then o called the school nurse and told her very bluntly it has nothing to do with her. Dd2 does not have shared care and between us as parents, school and hospital things are fine.

Today I get more correspondence-this nurse is trying to arrange a meeting to discuss her concerns?? It has been addressed twice now and her concerns were the result of a misunderstanding which has been cleared up.
Turns out she is also taking advice from dds old hospital (we left as they made her very ill and gave us wrong advice and treatment) so Iam not happy at all.

She also will not accept that she is not to be involved with dd??? I do not want her interference.

I have written in formally to school banning her from any involvement do why is she persisting ? Iam really angry
Do school nurses have any power at all? I'm thinking of taking this further

[WellErrr]

She sounds like fun!

Just reiterate your position (ie FTFO) in writing and then ignore. I don't know who your complain to though.

[SisterMoonshine]

She's persisting because she probably has to show she has tried all avenues to cover herself and prove that she is doing the right thing by a child.
She has her boxes to tick.
They don't mess about when it comes to children.

[Hedgehog80]

It was a ridiculous misunderstanding and if she had bothered to speak to us or 1:1 it could have been cleared up.....and even now I've explained she is still persisting ??

One of dd2s conditions is type 1 diabetes. It's hard to manage and she has no hypo awareness. She has a cgm which is about 95% effective and alarms of blood sugar low or high-she also needs finger pricks to confirm level and before every snack and meal

The school have a diary they had written down blood glucose levels and clearly labelled cgm or fingerprick but the nurse thought they were ALL finger pricks and decided this was a huge concern and has gone over the top about it and is persisting

[Hedgehog80]

She said herself she had limited knowledge and clearly has no knowledge of the difference between a cgm reading and a fingerprick reading

It's been cleared up but she keeps trying to arrange meetings when I've told her her involvement is not needed or wanted (we have an amazing hospital team who we see every 3 months) and I'm less than happy that she is involving our old local team (who made dd very unwell) and I have said before they are to have no involvement

[pinkerpeony]

It's a tricky one. It sounds like DD is getting really good care but the nurse might not know that. Could you give her a ring and explain?

[Hedgehog80]

I did, I spoke to her after she had gone straight to the hospital with concerns. They explained and I explained.
Two weeks later she then contacted GP about same thing so I reiterated and had to explain the misunderstanding to GP

Today I find out she's trying to arrange a meeting with school and GP. She needs to get lost! I've explained! There isn't an issue and I am irritated that she's taking advice from the old team who were awful to us (they made dd so ill and the care was worse than substandard)

[VagueIdeas]

So what are her concerns? That she thought school were carrying out umpteen finger pricks a day? I guess she's not used to coming across a child with such complex needs, and is peed off at the school refusing to hand over records and also, essentially, being told to butt out?

Can you maybe set up a meeting with her so she can air her remaining concerns and you can set her right?

I suppose from her POV she has a duty of care and she can't in good faith "sign off" DD from her care (because she'd be in deep trouble if something went wrong and her involvement was found to be lacking?) and so this is why she's being so persistent.

Anyway, just thinking aloud. Sounds incredibly annoying and I hope you get it sorted.

[Mysteryfla]

Go above her head and complain. Tell them what happening and let them tell her to back off.

[NoMudNoLotus]

HCP here - I wouldn't have any further involvement with her but go straight to her team leader.

And also involve PALS.

[DoJo]

So she thinks that, despite her limited understand of your daughter's condition and the fact that the only concern she has has already been addressed and dismissed, her input is so vital to your daughter's well-being that she is justified in attempting to ride roughshod over the GP, hospital consultants and parents wishes to involve herself in your daughter's care?
She sounds like she has an inflated sense of her own importance - does she really have nothing better to do than make work for the people who actually understand your daughter's needs?

[Spandexpants007]

Contact her superior. Her manager and put in a formal complaint

[Hedgehog80]

I'm really puzzled as the issue (her misunderstanding that do was having too many fingerpricks) has been addressed more than once

I think it is because she has sought advice from the old team (local hospital who work with the community nurses) who amongst other things came out with gems along the lines of "no child in our borough will ever get a 1:1 for these conditions" "just give her extra food with no insulin so her bg is high and then she won't have a hypo at school" "no she can't have a school lunch like everyone else" and "it's fine for her bg to be around 18 all aft every day" they even told us wrong doses for life saving medications so Iam less than pleased they are sticking their noses in

[cdtaylornats]

Perhaps the nurse wants to learn about your daughters condition so if she comes across it again she will know about it.

[SaucyJack]

I think furious is a bit much. She's just trying to do her job. She doesn't have the option to go away and find something else to do- especially in the post-Daniel Pelka school/medical culture.

It's a shame you can't all come to an agreement with sharing information between you. Rather awkward that gov. agencies are bein so obstructive and unhelpful to each other.

[FlyingScotsman]

If she wants to learn, I would advice a course, talking to her colleagues or reading book on the condition.
The OP's dd isn't there to train her.

[Hedgehog80]

If that's the case why did she not speak to us-she keeps trying to report 'concerns' that have been cleared up and arranging a meeting that is unnecessary and she has been told she would not be welcome at anyway. There are no issues either we are very happy with Dds care and the school have had training and are fine

[HairySubject]

She sounds very persistent. I second complaining to her manager.

[Hedgehog80]

But it's unnecessary for her to be involved. Everything is set up and working well hospital-school-us

I have enough on without having to sort out this and why have a meeting that is of no benefit to dd and is just an extra appt for us all? If she wants to learn she can go on a course like dds 1:1 had to

[FlyingScotsman]

Also as the issue has been cleared several times and you have given her the information several times, I would be looking at contacting PALS and/or her team leader If you can find their contact details).

It's one thing to want to clarify something. It's another to keep going at something where you have made a mistake.

I'm also surprised she contacted the old team who was lookingaftyyer her as they clearly AREN'T looking after her anymore so will not have all the latest information about her condition, how she is doing and what has been out in place.

[Hedgehog80]

It's because apparently every other child with same condition/s in the borough is under their care so they have their way of doing things
Dd is under a different hospital and they do things very differently and I think it's causing a few issues and confusion and she can't just leave it

[flanjabelle]

I would bexpect struggling not to tell her to shove her flipping 'concerns' up her jacksie.

Can you get the school, the gp and hospital consultant to write at the same time you do telling her that her input is not necessary and frankly would be unhelpful?

[HidingInTheCupboard10]

Just meet her with the school and the gp, explain the situation and explain that she will be updated IF she needs to be. Its not hard surely to pass over some info even if you don't want to, and it will probably get her off your backs better than saying in other words, 'fuck off and keep your beak out'.

[flanjabelle]

Be* sorry phone is a twat

[SaucyJack]

"But it's unnecessary for her to be involved. Everything is set up and working well hospital-school-us"

Clearly the powers-that-be think it's necessary- else they wouldn't be paying her to go round and review the care of children with medical needs in their borough. She can't know without assessing all available info. as to whose conditions are being managed well, or not. She isn't psychic.

I appreciate it's annoying for you to have yet one more HCP faffing about, but she isn't doing it to interfere or get at you. It's her job