I know this isn't a classic Aibu topic but I am desperate and wanted to reach as wide of an audience as possible. I have also namechanged, I don't know why, I feel terribly embarrassed about it all and although my DH and DM are supportive, I am struggling
I am 36 and I have severe pelvic organ prolapse. Uterine, bladder and bowel. There are various contributing factors: I had a large long baby and a very traumatic 70 hour labour (which lead to a mentally and physically disabled DD - I have a clotting disorder which is what caused the terrible labour), I have Crohns disease which increases toilet sitting and I am also prematurely going through the menopause (confirmed) so the lack of oestrogen adds to the issue (no idea why, although both my Mum and Nan were early 40's).
I am having surgery to correct the mess but in the meantime, my standard of life is awful and I would love to know whether anyone else has had a total failure of the walls holding everything back? One prolapse would be enough but having absolutely everything fall inwards and downwards (and into my knickers) is absolutely awful the pressure in my vagina and lower stomach and back is like permanently crowning my ginormous baby. When I say baby, I should add that she is 7 years old.
I am doing all that I can to avoid adding to the issue but it is difficult to avoid everything as I am both nurse and Mum to my DD and I have to lift her daily. I am already on a ton of very strong painkillers, warfarin, steroids and biologic medicine as well as insulin (uncontrolled type II) and several hypertension meds. It is grim and to say I have complex cormorbid health issues is probably an understatement.
I rest as much as possible. I am unable to lay on my stomach and lifting ia agony. I cannot easily get up and down off of the floor as everything is hanging. It is very heavy. I do my best to push everything back in but sometimes the tissue mass is absolutely huge and who knows whether the bladder or bowel are where they are supposed to be. This morning, I can actually see my cervix without a mirror. It's that bad.
What can I do? Short of laying down until I have the operation I am stumped on how to live, function, look after disabled DD, enjoy the sunshine, be a wife, be myself. By lunchtime I am literally crawling, actually that's a lie as I can't crawl, by lunchtime I am horizontal and rolling almost to wherever I need to be.
Has anyone been through this? I'm not expecting a bunch of people to have had all 3 prolapses at once but what did you find caused some relief of the symptoms for you? I have been on antibiotics for 4 months because my urethra is god knows where and urine is pooling in a place it shouldn't so I have perma-UTI's. The pain is so heavy. So uncomfortable. I feel like I have a rugby ball half hanging out of me. The genitourinary team and my GP are being wonderful, they are so sympathetic and are giving me every drug they can come up with to try and help but for various reasons, nothing is helping.
I am told I will be having the sling procedure whereby they will take skin from my abdomen or thighs and transplant it into the cavity to hold everything back and reduce the risk of rejection. The mesh procedure isn't an option for me due to my age and the severity of the prolapse(s). I am also told that a hysterectomy is a very real probability but that is a whole other can of worms because due to my clotting disorder I am unable to have HRT and I am already suffering enough with the menopause so to have a hysterectomy at 36 doesn't fill me with joy Has anyone had the sling procedures with their own tissue?
Aibu to hope there is another woman here who can I help me?
Again, I'm sorry this isn't a classic Aibu
Please or to access all these features
Please
or
to access all these features
AIBU?
Aibu to want to talk about pelvic organ prolapse?
19 replies
anditallfallsout · 30/06/2015 08:29
OP posts:
Please create an account
To comment on this thread you need to create a Mumsnet account.