To think a disabled adult shouldnt be left in bed til 10am because the council cant be arsed to find someone to do their care

(35 Posts)

Ffs. Really good start to the day, me crying in bed while the kids slowly dismantle their bedroom. I usually need a bit of a hand to get up, but today my back completely seized, my wrists are too bad too pull myself up and i was stuck. DH got in off nights at 10 am, helped me get up, carried me downstairs and did us all breakfast before going to bed.

The council have agreed care, but because of Dhs shift pattern, cant find anyone to do it. So they gave me direct payments, but i cant find anyone either. Had three people, (a friend, my sister and my bil) who all now have full time jobs and are unavailable. So now, this week, i've had a letter from them saying "as you NO LONGER WANT ASSISTANCE we are going to take you off our list".

I am sick of this. Why is everythign so fucking hard sad

Iconfuseus Wed 03-Sep-14 11:04:37

I'm sorry it's so frustrating. I hope you can challenge them.

TommyandGina Wed 03-Sep-14 11:10:21

Can you use a care agency, their hours might cost you more than the direct payments rate but it would be something at least. It is hard finding help though, I'm in the same situation with my ds, hoping you get it sorted. brewthanks

GimmeMySquash Wed 03-Sep-14 11:11:12

I am so sorry. I have been in the same state myself for a few days last week. I resent all the tax I and my family have paid into the system. I feel the system has broken the contract, you pay tax if you need help we will give it, well they do not help, they blame you and fob you off.

Teresa May said the terrorists are psychopaths, I often wonder if those in government are too after the nonsense with the King family and the way the vulnerable are being treated in the UK.

HeySoulSister Wed 03-Sep-14 11:11:19

Have you tried Leonard Cheshire Disibility?

PenisesAreNotPink Wed 03-Sep-14 11:11:58

Have you put an advert in the local paper, there's quite a few in ours.

MammaTJ Wed 03-Sep-14 11:12:38

It doesn't seem like a case of 'can't be arsed' though. They couldn't find anyone, you have backed that up by saying you cannot find anyone.

I know it is not good, but they cannot help it.

Maybe try a private agency and use the direct payments for that?

jackydanny Wed 03-Sep-14 11:12:55

What area are you OP?

extremepie Wed 03-Sep-14 11:15:06

Completely agree RE direct payments, what use is the money to pay for things if you can't actually access the right services to pay them? Makes no sense! Having the same problem with ds2 and direct payments for respite :/

BlueBrightBlue Wed 03-Sep-14 11:16:17

Get in touch with Penderels trust. They accept direct payment.
Try link:

Accessibility: A A Up and Coming Open Days, Click Here



User Involvement



Career Opportunities with Penderels Trust or as a Personal Assistant. Contact your local office.

Welcome to Penderels Trust

Penderels Trust offers advice, guidance and practical solutions to enable people with disabilities and older people to live independently in their own homes, to achieve their goals in life and to help them play an active part in their community.

We are a not-for-profit organisation and have been a leading provider of advice and guidance for over twenty years.

Please use the buttons below to find out more about personal budgets and direct payments and the services we offer to support you.

Penderels Trust staff in Skills for Care Promotion

Channel 4 is looking for you!

New Chair of Trustees Named

The Jonathan and Julie Beecham Award winner announced

Chair of Trustees retires from Penderels Trust

Find out more about personal budgets.Direct PaymentsSupport Planning and Brokerage Using a care agency.Becoming an Employer.Payroll Bureau Third Party Supported AccountsAppointeeshipsPromoting Financial Independence. Training Advice and Support.Advice and Support from Your Mobile Phone.

User Involvement Links

Penderels User Group

Peer Support

Nationwide Network
Newsletter Links

Summer 2014

Winter 2013/2014

See more Newsletters

Company Registration Number: 3560335 | Charity Registration Number: 1073513
Get Browse Aloud

Penderels Trust, Seven Stars Estate, Wheler Road, Whitley, Coventry, CV3 4LB | 0845 0500 862 Accessibility
Copyright Penderels Trust 2009-2014

Jinglebells99 Wed 03-Sep-14 11:17:03

Ah that sounds tough. Have you put an advert in the local paper. I noticed your previous helpers were all friends or family. Or as others have suggested a local care agency?

BlueBrightBlue Wed 03-Sep-14 11:17:21

Sorry about my pathetic attempt to link but my friend is severely disabled and uses them.

I havent tried much yet, i moan about adult services but havent been great at helping myself. I guess i was expecting them to try harder and its been an interesting eye opener.
I'm not really coping with it mentally atm, have chronic depression anyway since before i was ill, and just want to crawl into a hole tbh.

Council do it through an agency, it was them who couldnt do the hours. Ridiculous as thats the point of an agency! (Im a forner rec con ffs)

What we need is for dh to quit work, but cant cope with the drop in income sad

I'm in newport (in s wales, not one of the other ones)

Yes its been advertised, jcp and paper. 0 responses. I know why, its cause theyve only allocated 1.5 hours a day. Its just not worth it for anyone unless they live practically on my street.

SantasLittleMonkeyButler Wed 03-Sep-14 11:22:47

What call times do you need?

I work for a community care agency & we offer calls from 6.30am to 10.30pm, 365 days a year.

Thanks to everyone, i'm just feeling particularly low about it due to rough day + the letter. I know the council arent doing it on purpose.

Half hour morning, half hour lunch, half hour dinner. I'd work around whatever hours anyone could do - its better than having nothing!!

DancingDinosaur Wed 03-Sep-14 11:26:46

There must be alternative agencies in your area. Its not a case of can't be arsed, the LA has provided the funding for it. But if theres no one local to you, then an agency is the way forward. One worker can do 1.5 hrs because their income is boosted by other work from the agency.

I can normally get up (just about, with a pull from one of the boys). The help allowance is mainly for food prep etc

Just got into a bit of a panic earlier that if dh had been on days, i'd be stuck til night time with two starving, crying children (who cant get past the baby gate), as noone would be coming. If my help was arranged, at least they'd be scheduled to arrive before then. Catastrophic thinking, i know what it is looking back smile

SantasLittleMonkeyButler Wed 03-Sep-14 11:29:54

If you can be flexible with your call times, there must be an agency who can fit you in.

I would be livid with Social Services for not finding me one too! I work for Sevacare, and we have a branch in Newport. Do you know if they have been contacted?

SantasLittleMonkeyButler Wed 03-Sep-14 11:33:27

Oh, and as Dancing says, a Carer working for an agency will be visiting a list of clients - so although they only have 1.5 hours a day with you, they will still be doing a full-time job overall. I have clients who only have 15 minutes once a day smile.

ICanSeeTheSun Wed 03-Sep-14 11:37:15

I would ignore your DH shift patterns and work around the care for you.

If DH is home, then when the career come then regardless if DH is home let them in to do what needed.

Mrsjayy Wed 03-Sep-14 12:19:08

Aww lovey you not got it sorted yet try a carers agency yourself I know you think its a hassle for them but as a pp said they are working shift s so you woul d be part of the shift.

Mrsjayy Wed 03-Sep-14 12:21:37

I agree you need to look after your needs even if your husband is not at work you can still have a carer in

BlueBrightBlue Wed 03-Sep-14 12:33:59

The nature of care work is that they work strange hours often with a break of several hours between clients. A carer will have several clients in any given day.

Join the discussion

Join the discussion

Registering is free, easy, and means you can join in the discussion, get discounts, win prizes and lots more.

Register now