My youngest son is 6 and has borderline severe ASD. He is mostly non verbal and has no sense of danger and we have a SN pushchair for him to help keep him safe when out of the house.
For the past few months he had been engaging in 'self injurious' behaviours like banging his head on hard surfaces and biting or scratching himself. I mentioned to our SW that I was concerned about the fact that these instances are getting more frequent and I'm worried how we will manage in the future as he gets bigger/stronger so she refered me to a disability specialist person (can't remember the exact title!) who came over the talk me through some techniques I can use to stop him doing it.
Trouble is, she sat down and played me a DVD which basically said either distract him or physically put myself between his head and the hard object or hold him so can't bite/scratch himself until he stops.
Maybe useful advice for some but not very for me & ds, he always does this in response to not getting his own way so when he's doing it he's too wound up to be distracted and the blocking only works until I move then he carries on!
Aibu to be frustrated that the specialist can't really give me any other advice than this? I've told them it doesn't work and they haven't given me any other advice! What am I supposed to do when we are out and he's hitting his head against the pushchair and I can't block or distract him? Aibu to just want some advice that actually helps?!
I appriciate that it is difficult to give advice that works for 100% of people but I'm really worried this will get worse if they don't help me and not sure what to do about it!
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AIBU?
To be a bit fed up with the lack of actual helpful 'advice' from the disability team?
18 replies
extremepie · 24/08/2014 15:47
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