to want knee replacement/op/whate ver NOW?

(39 Posts)
marjproops Mon 13-May-13 18:45:46

im 48, not 88. Im told Im too young for knee replacements,they only last 20 years. ok. in 20 years, if I live that long Ill be 68.

i want to be able to walk NOW, i can get a scooter thing at 68.

was talking to a friend today also in this predicament. shes 57. in 20 years shell be 77.

shes told shes too young to have one now.

the cashier in a shop also the same. shes 61. 20 years time, 81.

there seem to be so many younger people around with walking sticks.

so why????? if i could afford to go private would my knees be done then?

any docs out there? what is young then?

id like to walk/run/play sports NOW, while I CAN.

marjproops Tue 14-May-13 22:02:08

south east London- ish.

while im here, where do you call/write to to get mobility help? i get some for DC but im needing it now too, especially for the car, although theyll want medical evidence which i intend to get.

used to get stuff like this through local job centre but they're not very helpful at the mo.

Whereabouts (very roughly) do you live OP?

marjproops Tue 14-May-13 17:46:32

waikiki yes Im an ok wieght, i do exercises every single day, knee exercises included, have done for years, all physio advised ones yet theyve never ever worked.

CMOTDibbler Tue 14-May-13 13:34:36

Knees can certainly be revised, but apparently they loosen faster in younger patients, and so where a 60+ patient can expect 20 years with their knee, a 40 year old is looking at more like 10. And the bone round the implant is progressively weakened, so after the first revision things get really hard.

DH is putting off a knee replacement as long as he can - at 41 he has bone on bone arthritis, a leg swollen from ankle to mid thigh, and his bone spurs have cut through his ACL - and his bone density probably won't support more than one knee replacement anyway. So he might get 10 years and then face amputation according to several surgeons he's consulted now

waikikamookau Tue 14-May-13 13:28:31

if you are in London see if you can get a referral to the royal national orthopaedic hospital, they are in Stanmore and also in W1.

or if you want private, some of the rnoh bods work privately ,
knees aren't easy,
is there another knee operation that can be done? an osteotomy, rather than an actual total knee replacement?
are you an ok weight?
and yes strengthen the knee muscles.

hiddenhome Tue 14-May-13 13:27:43

It's ridiculous. If you need a replacement when you're young then you should have one.

I'm a care of the elderly nurse and we have a significant number of residents who had replacements (hip and knee) late in life and they end up never walking again because they're too old to get used to them or they have other health problems.

digerd Tue 14-May-13 13:20:32

DoubleMum

I met a lady yesterday who'd had a knee op which went wrong. Her whole thigh was swollen like an enormous balloon. shock. She was in her 60s I reckon. Forgot to ask her which surgeon in our area had done the op. confused.

Pleased that you have your life back and it worked for you.
.

marjproops Mon 13-May-13 21:11:02

bingo thanx. will do that.

I always think even if it did go wrong or whatever, im going to prob end up in wheelchair anyway at some point and id rather have tried than not at all?

DoubleMum Mon 13-May-13 21:09:24

Digerd I don't have the issue of not being able to kneel since I couldn't kneel or crouch for years before the op anyway unfortunately - I could do very little and by the time I had the op done I could do almost nothing.

I would like to emphasise that it's a major operation and very much a last resort, but I couldn't look after my children, I couldn't go out except in a wheelchair, I was in constant pain even on the strongest painkillers. Now I have no pain unless I overdo it and I can live a relatively normal life. There's still plenty I can't do, like kneeling, getting down onto the floor and up, having a bath, getting out of the car in a tight spot. I will never have a good bend in either knee. But it's nothing to what I couldn't do before, and it's given me my life back and my children their mum back.

Bingdweller Mon 13-May-13 21:03:19

marj if you can, do your research on the NHS surgeons to find the best regarded knee surgeon you can. My suggestion would be to locate your nearest private hospital (most of them do private work too) and look at their hospital website. Check out the orthopaedic profiles for the knee consultants and get as much detail as you can. Phone the hospital for advice, ask them who are the surgeons who deal with complicated knees - I guarantee there will be names given to you. Once you have the info, approach your GP and ask to be referred to their NHS list. This will hopefully avoid you going on to a generic orthopaedic list. PM me for further details if needed.

I'm sorry to hear so many people have had problems with replacements. My dad has had both his done with partials, and then one redone, 11 years on with a full replacement as the partial had worn out. He was only 51 when he had the first partial done, and had to go private but it was the best £5k he ever spent, so he says!
Seriously, he's had absolutely no problems with any of the surgeries - he wears kneeling pads for doing any work, but other than that, it's like a new lease of life for him. 4 rounds of golf a week, DIY, and looking after the grandchildren. He was absolutely religious with the physio and exercises tho. Good luck!

digerd Mon 13-May-13 20:50:58

DoubleMum
Due to the arthritis in my lower back, I have to keep changing from kneeling to crouching and bending over to do chores. The reason I had the Arthroscopy on my cartilage done was to be able to kneel and crouch to save the terrible pain I got bending over. I also have knackered hamstrings from bending over, after I tore my cartilage. with straight knees, which I was proud I could still do and enjoyed the feeling, until they decided they'd had enough went permanently on strike with the small of my back in cahoots.sad

Having a replacement knee means I can never again kneel or crouch. The knackered hamstring will also cause problems with the metal knee.

And this year I have been having pain in around my hip/groin. The knee is behaving quite well though smile.

julieann42 Mon 13-May-13 20:48:22

I work in a private hospital and we do knee replacemtns on younger patients like yourself. Admit idly most of our patients are older but recently we have had some 40 and 50 year olds being done! It's possible but again I know they are not keen but given your poor quality of life I think they should re consider.

marjproops Mon 13-May-13 20:30:42

squinkies EXACTLY.

landof (love the name!) and Im around London, 2nd op I had was in Spain and the excellent surgeon there said that afetr the 1st op was sucha mess i could still end up in a wheelchair, and hed done the best he could.

this was back in 2000, so knees have just about held up pretty well tbh. but he said id need new knees sooner than later.

yawn thanx.

My sister was given the same line, you are too young. It's a stupid excuse, she is practically disabled needing it done, and in a lot of pain. she was late 40's too. Yet they would rather her be on disability young than continue her career, then when she is "old enough" get it done, when she would be getting ready to retire anyway. Makes no sense what so ever.

NUFC69 Mon 13-May-13 20:21:32

Whenever I go through electronic security at the airport I never hear a beep, but they always ask me if I have had a replacement (they've never demanded to see my scar, though).

Spikeytree Mon 13-May-13 20:21:20

I'm 32 and have been told I need both knees replacing but they won't touch them for another 20 years. I'm in pain a lot but I've seen family members have joints replaced at a young age and it has gone wrong, so I'm in two minds about having it done even then. My DSis had her hip replaced 4 years ago at 36 and is still on crutches, and my DM had her hip replaced at 31, then had me, and when they came to replace the replacement they found they were unable to do so, so she has no hip in one side. I'll definitely be holding out as long as possible, although I do know how debilitating the pain can get.

Smudging Mon 13-May-13 20:17:16

Message withdrawn at poster's request.

Yawn4theday Mon 13-May-13 20:15:11

No, usually made of titanium or other type of metal that will not beep at security.

Good luck with consultant.

landofsoapandglory Mon 13-May-13 20:14:16

marj I have metal in my back and pelvis, I didn't go off leaving the UK, but it did leaving Lanzarote last year.

landofsoapandglory Mon 13-May-13 20:12:30

I live in chronic pain and would do anything to get out of it, so I know exactly where you are coming from.

Whereabouts are you OP? If you are in the East Midlands I can give you the name of an excellent knee surgeon.

marjproops Mon 13-May-13 20:09:34

stupid question alert- do metal things in your knees beep at airports?!?

marjproops Mon 13-May-13 20:08:31

yawnyes this is a consultant at the hosp, im taking note of everything here on this thread and will take the power of mumsnet to him!!!!!

DoubleMum Mon 13-May-13 20:05:49

Digerd I don't find them heavy, and I have found my muscle tone has improved a lot. I still don't have anywhere near a full bend but life is 1000% better than it was before I had them done.

NUFC69 Mon 13-May-13 20:05:49

I was 65 in March and I had my left knee replaced two and a half years ago. My knees had been playing me up for years before but it quite suddenly got much worse. The wait for the operation was from July to October. However, whilst the pain has gone I would now say that I consider myself disabled whereas I didn't before.

It's all the things that I can't do that I miss. Exercise is difficult - I walk with a limp, and am not allowed to do anything energetic (I was playing badminton the week before my knee suddenly went), swimming is difficult as I no longer know where my knee is, if you see what I mean? They have to cut a major nerve to do the operation and the feeling has never come back properly round about the knee.

My other knee wants replacing; the consultant has already said to just let my GP know when I am ready, but the thought of having it done fills me with dread. I can't even do a simple thing like climb into bed the way I used to - I have to sit on the bed and swing my legs up. And, of course, you can't kneel so that means things like weeding the garden, cleaning the floor are no-nos (not a bad thing, you might say!).

Sorry to be so negative about it all, but it is honestly how I feel about it - so please don't think it will necessarily be wonderful when you have it done. Have I been unlucky? Possibly, but there is no going back now. I just wish I had taken some stronger painkillers!

Good luck, though, with whatever happens.

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