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This is page 1 of 3 (This thread has 25 messages.) First | Previous | Next | Last Go to page

DS 1 nut allergy diagnosed today...

(25 Posts)
By Wed 24-Jun-09 15:17:20 Add message | Report | Contact poster
I'm in shock really as I thought we'd get the all clear from DS1s blood test!

Turns out he has Grade 4 mixed nut allergy and Grade 3 peanut allergy. Don't know what the grades mean and the GP said not to get hung up on them, the fact is he is allergic to nuts.

I'm a nurse but work with adults and feel so overwhelmed that he has to live with this condition for life.

DS1 is almost 4 1/2 yrs.

We've been referred to St George's allergy clinic (SW London) - anyone have any experience of the clinic?

Should we have DS2 - almost 2 - checked out too?

How do we manage with birthday parties, packaged biscuits and cakes? I'm so sad for him!

Any help appreciated!
Add message | Report | Contact poster By Thu 02-Jul-09 09:15:53
Thanks for the ongoing support - it's really appreciated.

I've spoken to the new school and they seem very clued up, no school nurse but teachers trained to use Epi-Pen and they assure me that it's a completely nut-free school!

We've ordered a couple of medi-alert bands too which will put me at ease when I'm not with him.

I have to say I'm amazed at how unfazed DS is being, I'm so proud of him. It turns out that a couple of his favourite treats are now unsuitable because some packets may contain nuts (I guess we've been lucky with them so far), he has accepted this completely without once saying "This is unfair".

Thanks again!
Add message | Report | Contact poster By Fri 26-Jun-09 21:20:03
see here www.mumsnet.com/Talk/allergies/736163-Severe-nut-allergy for more nut allery tips
Add message | Report | Contact poster By Fri 26-Jun-09 21:02:57
This website has sports bands that might be suitable for a boy? They come in different lengths so might be OK? www.universalmedicalid.com/mkt_uk/category.php?scrollcat=brac_sport&pullid=29&mastercategory=bracele ts&bbscrollerpage=6
Add message | Report | Contact poster By Fri 26-Jun-09 08:58:05
I should add.... I was so upset by DD's diagnosis at 8 months, but just over a year on I can honestly say I don't worry about it at all anymore, not because I've become blase about it, but because it's become 2nd nature.
Add message | Report | Contact poster By Fri 26-Jun-09 08:53:14
The policy on epipens varies by area. We got presecribed them for DD (peanut/egg/milk allergy) in London, but in Bristol for example they only prescribe them if the child has had a reaction that involved breathing problems or asthma (I've seen this policy in writing).
Add message | Report | Contact poster By Fri 26-Jun-09 08:34:48
Hi,I will second everything already said.It is such a shock at the beginning.
Ds has been wearing the medi-bracelet since he was 2,he's 6.5 now and it has helped him to explain his allergies to people who ask about it,especially other curious children so a very beneficial thing .

Have a look at the anaphylaxis campaigns website and I would recommend joining.They do fab workshops for parents .

Sorry you are going through this but it honestly does get easier with time.
Add message | Report | Contact poster By Fri 26-Jun-09 08:23:16
Seen at a paediatric allergy clinic. Can't fault them - everything was done in one stop - doctor, allelrgy nurse, blood test, skin tests. dietician appointment, written plan, antihistamines.
I just wish I'd pressed them on the reasoning about the epipen.
I suspect it's because as you say tatt she doesn't have asthma and didn't have any airway compromise or breathing problems in either reaction ( although she did cough for half an hour...)
Might get back in touch and go through the epipen thing with them again.
Add message | Report | Contact poster By Fri 26-Jun-09 07:40:44
Thanks for the wristband links - DS has agreed that he'd wear one when we aren't around, at school etc - but only after I stressed that they are very boyish, and definitely not bracelets! He's going through a very anti-girl stage.....!

We got two Epi-Pens (JR) on the day of diagnosis. I imagine if you are at risk of anaphylaxis, as in the case with a nut allergy, you should be given one at diagnosis? Makes sense.

Any idea what waiting times to be seen in "allergy clinic" should be?

E xxx
Add message | Report | Contact poster By Fri 26-Jun-09 06:45:59
strash they don't always give out epipens if the reaction didn't affect breathing and the child doesn't have asthma. Did you see an allergy specialist or a peadiatrician? Most people have to see paediatricians as there are very few allergy consultants. Having seen both I would travel a long way to see the allergy consultant.

Sufficient unto the day ......OP take one day at a time. You have years to train your child and their friends in how to manage the allergy. It's also posible new treatments will be available in 10 years time.
Add message | Report | Contact poster By Fri 26-Jun-09 04:49:56
mediband
This is page 1 of 3 (This thread has 25 messages.) First | Previous | Next | Last Go to page
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