I have now tested negative for coeliac disease twice, once in 2009 and once in March this year. No further testing will be offered. As I still had symptoms when I saw him in March my GP referred me to Gastroenterology and my appointment is next week.
After my gluten challenge and negative test in March, I removed all wheat, and then rye and barley from my diet. Result, no more symptoms, no more skin rash/infection, no more random sudden onset episodes of uncontrollable diarrhoea.
However, it’s not quite that simple. I can actually eat some types of bread. For example, sourdough seems to be fine, but white sliced provokes a reaction. I can drink some brands of beer quite safely, but not others. DH and I think the problem is not necessarily the grain, but more likely a chemical used in production and, as I don’t know without testing what I can eat/drink and what I can’t eat/drink, it’s very much guesswork and has resulted in some unpleasant ‘accidents’.
I also think this is part of a wider allergy/intolerance picture because I also have other symptoms. Someone came into where I work yesterday to drill a hole in the wall and I was sneezing all the time he was doing it, until my nose bled. Air conditioning has the same effect – every time. Household cleaners make me choke and retch, some foods bring me out in a rash and so on. This is happening on a daily basis.
I’ve asked repeatedly for a referral to an allergy clinic, but have been refused twice on the grounds that there is not enough evidence, so for the time being, I’m stuck with the gastroenterologist. Does anyone have any experience of this sort of situation? Is it likely that he will understand my position, or am I likely to just get stuck in a protocol. The team leader’s speciality is endoscopy as a diagnostic in disease of the oesophagus, which seems quite irrelevant to my situation.
I'm really stressing about this now. How can I ensure I get something out of it? Are there any buzzwords I should use, anything I need to know?
Thanks
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Allergies and intolerances
Gastroenteroly appointment next week. Stressing
10 replies
Pleasemrstweedie · 24/06/2016 14:37
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