High IgE levels- anyone help?

[nikkie]

Just got my dd1s test back and she has extremly high levels of IgE and it is impossible to distiguish what she is allergic to.The enxt step would usually be skin prick BUT locally they are reluctant as this can incite more allergies in small children.The GP has referred back to the hospital ,but has anyone else got any experience?

[nikkie]

bump

[7up]

hi nikki, no advice for you sorry but ive just gone on search archived messages and put in ige levels and a few threads came up, you could have a read of those to see if anything helps while you wait for some replies, good luck

[nikkie]

Just been looking at those and googling but just am totally shocked at how high her levels were compared to reactions.

[gigwig]

DS has very high IGE levels too -scared me very badly at first,especially as no one knows much about it, including the hospital.

All I can say is that DS is now 3, still has these very, very high levels, (last blood test a few months ago) but is growing OK, and is generally healthy, active and happy and on the surface at least seems no different to others his age. However I do fear about the IGE levels, but there is nothing we can do about it.

He had RAST tests when very young and these showed he is allergic to lots of things - some of which he was already eating with no ill effects so we have carRied on giving him these.

[nikkie]

My dd1 is 6 and has only recntly had any reactions(followed on from being ill-think her immune system was working to compensate).
Are allergies hereditary? I am allergic to lots as is my Mum and Nanna, we have never been tested for IgE levels , i had some basic environmental allergy tests though.

[nikkie]

gigwig if you don't mind me asking how high were they?

[nikkie]

bump anyone?

[nikkie]

bump

[nikkie]

Have x-posted on health as I have also noticed she is losing weight, not sure if this means anything as it is only 2kg from 21kg to 19kg.

[Chandra]

Nikkie, are these private tests? if so, what lab did you use?

[Chandra]

I'm just asking because DS had a ridiculously high results for IgE and I thought you may have used the same labs... If they are the same I can comment on several things.

[nikkie]

Nhs tests, through GP.
What did your son get?
my GP had only seen results this high in people with tape worm!

[gigwig]

Nikke
DS IGE levels are 13 times the average.

[nikkie]

Just realised I never put her results and am asking everyone else The Gp said normal is 0-52 and hers is 4115

[gigwig]

Oh, that does sound quite high, I don't know the exact number of DS, just the consultant said it was 13 times higher than what is normal. It has got higher as he has got older.

I did worry a lot about the IGE, but as there seemed to be nothing they can do, I have learnt just to live with it. Even though I do still feel fearful about it.

When he was 2 we tried him in a nursery but it was too much for him he was getting bad asthma attacks there and rashes and so on. He started playgroup - a year later - and is able to cope with all the new and unknown people there and so on. Although at the start he got asthma a little bit but has got used to the environment there.

I hope this helps in any case. Just to let you know that our DS has high IGE and still functions fine.

[nikkie]

She has asthma whichis sometimes affected by pollen, and so far we have worked out she is allergic to xmas trees and ivy (eyes)BUT before Nov she had not had a reaction to any thing(apart from the asthma)

Does this sort of thing run in families?
I get reactions as does my mam and nanna (all skin) I would like to see if my Ige levels are high too.

[Chandra]

DS has very high IgE too, we have chosen to ignore most of the allergens to concentrate just in the worst offenders (which are, unfortunately, many ) oterwise he would be in a diet of apricots, mushrooms and meat (which are the only things the tests showed as non-reactive)

[gigwig]

It's meant to run in families. Doesn't in our case but who knows what the cause is.

Yes we too ignore the allergens that don't seem to cause symptoms as otherwise DS diet would be too restrictive.



Hives happens a lot ie touching a table in a cafe that has had tea with milk in it split or crumbs from a cheese sandwich touching his hand.

[nikkie]

Problem is they couldn't give us any allergens as the reading was so high.We now have to wait for hospital advice.

[Chandra]

I would avoid just the things you are certain she reacts to until you get further advice. DS has >300 times what is specified as the lower limit to be considered allergic to egg (Which means he went out of the scale) however he doesn't reacts as bad to egg as he reacts to milk which is barely in the limit.

[yentil]

how can i get my 8 month old dd tested for allergies? and is it even useful?

her excema is getting worse and i am weaning her now so want to know wat to avoid. i have a gut instinct that dairy is the culprit but don't wantto take her off formula until i know for sure

i am willing to pay for private consultaion if it speeds up the diagnosis.

TBH i am just desperate for answers and fed up of fighing a seemingly losing battle

[nikkie]

We have no idea to the allergens hence testing originally.

Yentil- I just took dd1 to the GP so no idea re private tests.

[Chandra]

IME most allergists/paeditricians are somewhat reluctant to test for allergies at such young age unless there is a very serious allergic reaction. Mainly because many of these allergies will be outgrown soon. There are some guidelines for weaning children who have some family allergy background, it would be worth to have a good look at them and avoid them as advised.