Adopting a child with Foetal Alcohol Syndrome(12 Posts)
You will find support at www.fasdtrust.co.uk. And check out today's article on http://www.channel4.com/news/doctors-call-for-alcohol-tests-during-pregnancy
My post was to the op, although I think you posted on it too Nananina
Hopefully the baby you mentioned was adopted and is getting the support it needs and deserves.
I can't remember your post Moomoomie as my brain cells are ageing quickly! I was really putting my five cents worth in. I often wonder what did happen to that baby I mentioned.
You commented on my post about the diagnosis my youngest two daughters received of FASD.
I am happy to discuss with you if you want to PM me.
I think one of the problems of a child who has been diagnosed with FAS is that there is no way of knowing when they are babies, where they will be on the FAS continuum, which could be anywhere between completely normal and horrendously troubled and troublesome.
80% of cases in the UK go undiagnosed. I was involved with a case when working as an independent sw and I visited the foster carers looking after this little girl. She was 8 months at the time, and the minute I saw her I recognised the facial features, lack of a philtrim (the thing between your nose and top lip) very thin top look, mis-shaped head - she was small for dates and her birthmother was a chronic abuser of alcohol. I only knew about FAS because many years ago I had placed a baby for adoption, and I didn't meet the adoptive parent for another 20 years or so and she told me all about the troubles they had had with the baby I placed, and her mother abused alcohol. Thing was I didn't know anything about FAS when I placed this baby. The 8 month baby I mention above had exactly the same facial features as the baby I placed all those years ago and had never heard of FAS.
I mentioned FAS to the foster carers of the 8 mth baby and they looked at each other (they had been fostering for over 30 years) and said this baby reminded them of another baby they had fostered, whose mother abused alcohol.
I spoke to the HV, but she was not interested and was saying that a child could be born addicted to drugs, and can withdraw. I told her that I was aware of this but this is not the case with FAS as alcohol gets through to the placenta and damages the cells of the unborn baby. I read a very good book called "FAS the Hangover without a cure." The GP poo-pooed me as well. The guardian in the case was fortunately someone who had been in my team in Fostering & Adoption for the LA, and she took me seriously and happened to know a specialist medic in Glasgow and the LA reluctantly paid him to assess the child. He found that there was no doubt at all that this baby was a FAS baby. He diagnosed by the facial features and other factors (I think some FAS babies don't necessarily have the facial features) butwarned that like any sydrome it would not be known until the child grew up just where she would be on the continuum.
I was assessing relatives to care for the child on a permanent basis, but when I told them of the problem, after much thought they decided to withdraw their application. I was quite relieved in a way because they already had 3 children and were struggling financially. As my involvement ended at this stage I don't know what happend to the baby.
It's so good to hear of so may positive accounts of people caring for FAS children.
Lilka how old is your DD how long have you been waiting for diagnosis.
there are lots of information on UK Webb www.fasaware.co.uk . Early intervention is important 0 too 7 FASD as FAE is now known , FAS/FASD interventions will be good for any child with or without disability's will do no harm just an alternative way of parenting "Reach too teach you can download
for free. Many LA's , Childcare professionals , Students, and NHS use this webb site as a tool. Lots can be learnd whilst waiting for a diagnosis. We have
a child with probable, is doing OK its only probable because of births mum's reluctance too give history too Genetic's. but is definate FASD. He has done well now an adult.
Great too here this , if any one is interested there are profile's of children wanting adoption/waiting adoption by LA's etc. at www.fasdtrust.co.uk
dont read into any Orgs interpretation's of FAS most is exported
from the states etc. who have a fragmented health system's. all FAS children are different. Good as a guide though .
Avril Head has been very open and honest about her experience of adopting her Dominic who has FAS. And he is a marvellous young man who has achieved so much more than anyone could have predicted.
Of course, Avril and her family are extremely experienced foster carers and Dominic had a guardian angel watching when they first sorted out his foster care!
I used to coe across her at various school events. I have never seen Avril without at least one disabled fosterling, she juggles oxygen canisters like we juggle bottles! I believe she and her merry crew are just back from RVing around New Zealand!
Reason i am asking have attended recent meetings with SS and CAMHS re pre adoption with other parents. FAS was one subject discussed , did not say we had such children, was agast at there negative interpritation, which was out of date and very very negative. were surprised when later explaind all is not doom and gloom and what people like too here are ways too turn and look too posotive solutions.
How wonderful that your daughter is doing so well Congratulations to her and to you
My DD2 has probable FAE, but they haven't actually made the diagnosis. She definitely has most of the symptoms
I have no experience of this at all but just wanted to say Thank you for your beautiful post. Your dd sounds lovely. A credit to herself and to you.
Has any one experienced this or been approached.
There is alot of miss information around, Our girl was born with FAS weighed in at 1.12lbs came too us at 3months at 4lbs Adopted her some months later
had multiple problems she is now 22 still has FAS but is living a full life, driving
and has a good job. She has been through the mill but with good early interventions is a treasure always was a very late learner as all FAS children are. would be intersted too exchange experiances or discuss.
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