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Poll If you thought your child had additional needs were you right ?

(120 Posts)
Babieseverywhere Tue 17-Jun-14 07:53:35

Q. If you thought your child had additional needs were you right or wrong ?

Not necessarily that you knew exactly what it was but at the end of the journey, were you right that there WAS some kind of extra help needed ?

littledrummergirl Tue 17-Jun-14 08:01:34

Yes. Now he is at secondary school the teachers have put steps in place and organised an ed phsyc. He has also been diagnosed as moderate dyslexic.

So pleased to finally be getting support for him (and to know that I am not crazy).

LookingThroughTheFog Tue 17-Jun-14 08:03:21

I was right. DS had dyslexia, which was clear and obvious for a long time. I was lucky in that the school worked with me rather than against me to get him the help he needs, but less lucky in that in my LEA they don't test for it until Y3.

So there were a good few years of 'It's because he's a boy!' and 'It's because he's summer born!' which were gruelling. There was a lot of 'have you tried teaching him in this way...' which were also gruelling but interesting as we stormed through every single method of teaching a child to read with no success. There were also 'what you need to do is read to him every night' which was infuriating because the insinuation was that I didn't already do that.

When he got to Year 3, I'd been in to talk about his literacy so many times that the forms for the Educational Psychologist were already typed up and waiting for my signature.

Niklepic Tue 17-Jun-14 08:03:44

Yep. Took DS to the health visitor aged 3 because he couldn't run or jump. Health visitor said it was down to his age and wouldn't refer on. He was diagnosed with duchenne muscular dystrophy aged 5.

ilovemonstersInc Tue 17-Jun-14 08:05:00

Watching
Cant say yes or no yet officially but salt say yes.

Niklepic Tue 17-Jun-14 08:05:54

Sorry just noticed you said additional needs, not special needs.

WeirdCatLady Tue 17-Jun-14 08:06:04

Not exactly additional needs but I knew she had health issues and that it wasn't a virus (which was the GP's comment). It took five years of me being a pita to get a diagnosis. Then a further year with me being a right royal pita to get treatment. A most unpleasant story but, touch wood, we're now 18months into managing her condition and her life is as good as we can make it.

gatofeliz Tue 17-Jun-14 08:14:10

Yes, we were told by G.P and HV Ds was always running at his adjusted birth date hence his slow development but we knew by 10 months something was very wrong.

He was diagnosed with mild Cerebral palsy, Global DD and a Speech & language disorder. He will be assessed for dyslexia and other learning difficulties next year.

extremepie Tue 17-Jun-14 08:14:56

Yes, everyone told me 'he'll catch up in his own time, don't compare him to his brother' etc. Took him to the gp, had multiple appointments with hearing specialists and paediatricians.

18 months later he was diagnosed with autism!

Coughle Tue 17-Jun-14 08:18:59

I'm watching mine. Behaviour and emotions. Never met another child quite like him and all my friends agree... Maybe it's just his personality thigh?? I don't even know what I'm looking for.

Coughle Tue 17-Jun-14 08:19:27

Though not thigh. Nothing wrong with his thighs smile

Branleuse Tue 17-Jun-14 08:19:48

yes, both times

Branleuse Tue 17-Jun-14 08:19:54

yes, both times

TeamEdward Tue 17-Jun-14 08:22:40

We've just had DS's diagnosis report back from the CDC.
It was noted by a nurse 2 years ago that I'd commented on tics when he was just 7. He's now 9 and was referred to the CDC by CAMHS and school for social communication issues.
Paed was very clear DS has no Soc Comm issues, but Tourettes.

TeamEdward Tue 17-Jun-14 08:23:21

Oh, and his dyslexia may have been misdiagnosed, as it could be a TS comorbidity.

Donki Tue 17-Jun-14 08:23:40

Yes.
Despite school's insistance that he was "just" a lazy boy.
(ASD and hypermobile hands/fingers making writing very difficult/untidy/painful)

Boaty Tue 17-Jun-14 08:25:07

Yep, I was right...after 26 fucking years! I just knew there was a problem but everytime I tried to get DS1 support/help I was treated as though I was being PFB. I had severe PND and every time I expressed worries I would get a pat on the head hand, the head tilt, and 'how are you feeling these days boaty?' Even years later! He has now been assessed ASD and a MH issue.

Babieseverywhere Tue 17-Jun-14 08:29:01

Arghh, the head tilt. It makes me want to grab a piece of string and kindly keep their head straight. ...wouldn't stop them talking crap mind.

Keep them coming. TBH it would help if anyone who was wrong posted ?

Fav Tue 17-Jun-14 08:29:30

Ds1 - I'm convinced there's something, struggles socially, reading and writing skills are terrible. There's nothing major, but a few niggly things, but no-one to take it seriously, all put down to PFB.

Ds2 - went through nearly three years of being told he was naughty (at home), and dh and I weren't disciplining him. Turns out he probably has aspergers.

Babieseverywhere Tue 17-Jun-14 08:30:25

Fav, did he behave at school ? (Sounds familiar)

ModreB Tue 17-Jun-14 08:36:59

Yes. I said for several years, since he was born really, that DS2 had additional needs and was repeatedly fobbed off. He was Dx ASD/Aspergers/Dyspraxia at 7yo.

He finally got the help he needed, and at 22yo is at Uni and doing well.

Fideliney Tue 17-Jun-14 08:38:00

Yes

AtYourCervix Tue 17-Jun-14 08:38:48

Yup. Twice. D1 dyslexia - fobbed off by school until she was 17. D2 Aspergers - diagnosed at 13.

WaveorCheer Tue 17-Jun-14 08:39:12

Yup, I've been convinced DS1 has an ASD since he was under three months old. Sent away to wait and see innumerable times. He's now 3.7 and waiting for a multidisciplinary assessment but I'm so right, and the professionals all (unofficially atm) agree.

dawndonnaagain Tue 17-Jun-14 08:40:40

Yes. He's at uni now, he has ASD and various co-morbids. Because he was incredibly articulate (it was like talking to an adult) the school told us we were talking shit and it was us hothousing him (headtilt from teacher). She also told us that he was neither gifted nor talented, she had experience and she would know a gifted child if she came across one. We took him out of school, found a GP who would listen and he got his diagnosis at seven. The school he went to later loved having him, and yes, he was g&t and no, we didn't hothouse him.

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