HI LADIES..

Quick intro...
I am now 40 have had 7 m/c's in last 4 years no live births. Beanies die as soon as they get HB.
Have tried allsorts..... Heparin,aspirin, progesterone will now be aiming for he steroids.

Anyway, I went to hospital the other day regarding a mole. Doc said it was OK and froze it off. She checked my back for me and noticed a spread of spots under the skin... I can't remember the name will find out and put it on here soon. I was aware of this rash thing as I have had it before. It comes and goes. The last time I had it was five years ago. Anyways, when she saw it she asked if I suffered with APA . I told her about m/c's and she ws not surprised and stated to were linked together. Now she was spanish and quite difficult to unnderstand but I am sure that's what she said.

Soooooooooooo, does anyone else have a rash type thing on torso, back, and arms?

Thanks......

Either way responses appreciated.

no advice oinker, but bumping for you

Thanks................

Bumping for you also, No idea!

Saves me typing it again I have updated the original thread honey.

I hope your ok? Are in in much pain? How is the loss?

oinker,

hello,

did you join the hughes support group i linked,

i have read on there about a body rash but i cant remember the details,

have a look over the archives or do a post,

someone there will know,

take care x

JJ

Hiya....and thanks

I did try and join the chat but never received an acceptance email so all I could do was look in not chat

I will try again though am not sure what went wrong the first time round.

oinker,

you been tested for lupus?

sure you have seen this before

skin rashes here

does it look anything like this?

Oooooooooooooooohhhhhhhhhhhhhh.....

No mine just looks like dark blotches tiny freckle sizes and under the skin. Only really itchy at the joints.

I have been given some cream for it now so hopefully this will get rid of it.

oinker,

read hughes newsletter no 2490 (i got mailed it today)

go to entry 1a and read it all (including the original posts which are shown underneath the response)

there is some really interesting stuff about st marys, dr raj, the role of steriods and nk cells,

hope that helps,

JJ

I tried looking for it but not sure if I am in the right place I keep getting a message from Tammy ????

This is what I have been doing....

I go into the Hughes site...I then log on with password etc thru Yahoo...
Once accepted by Hughes I search for 2490 and geta message from TAMMY.......It's wrong isn't it....

I am a real technophobe. i really struggle on the internet...Am a bit of a thicko...

random bits of the message with all personal details removed...

+ I think ST Marys are doing some TEG research which is immune related but not sure when results are due.

+ Dr Shehata uses steroids for blood flow and to dampen immune reactions and the CARE Nottingham private clinic uses that too.

+ There is a study called SPIN being done just now which looks at empircal use of heparin so there is something there to be investigated.

+ Dr Raj said that he is the only consultant at St Mary's that uses steroids, so is less conservative than others there.

+ He doesn't really believe in things such as the role of NK cells on miscarriage.

+ He sometimes uses steroids as aspirin and heparin alone have failed and apparently steroids can prevent inflammation and allow blood to flow more readily.

+ This is quite a new science, but if it can deal with immune issues too then fantastic!

hope that helps x

after googling i found this

TEG testing

note the detail about blood collection WITHOUT using a cuff on the arm,

hhhmmm...

interesting...

oinker,

have you been tested for MTHFR?

info here

JJ

You know what?

I have had those tests and have only just realised that a cuff was not used.. No-one said anyhing to me at the hospital that it was a unique method. Thanks for that bit of info..

Not too sure about Raj Rai having a less conservative view than others at the clinic. He certainly does not want to treat overweight people with the steroids. He has turned his nose up to me and that's after losing 5 stone in weight. I have a slightly high BMI...31 but he wants it at 28. SOD!!!!!

It's all to do with stats. He won't give it to me cos it would look bad if it failed and I got even fatter.
My freind has just had a baby and Raj was her consultant. She was a private patient and an overweight one at that.. He has never mentioned her weight. She told me so I am an NHS patint so he can bang on about my weight as much as he wants cos I have nowhere else to go....

MONEY DOES TALK !!!!!

JJ

No too sure about the MTHFR.

I do inject heparin and take two baby aspirin every day from getting a positive test.

It sounds as though the heparin and aspirin is the treatment for everything!!!!

have you taken high dose folate too?

dr beer is another name mentioned alot

also there are some ladies who have a pos aps test who inject 2 shots a day

read this

oinker,

this is an interesting article and it seems quite easy to read/understand

Hey oinker...

How did your first day back at work go ?

I just realised on this thread by clicking one of jules' links. I get corned beef skin when cold, blue lips (freaks DP out lol) Blue hands too. I am told its all down to my factor V Leiden.

I am seeing my consultant on wed for my mri results (Which i havnt had yet ) Hopefully will get the hisotlogy report results explained to me and then I am gonna ask about further testing once all this mess with mass is over with

Hiya Hun..........

Oooooooooooooooohhhhhhhhhhhhhh

Thunder and lightning has just kicked in here in London is it safe to use my laptop during a storm???

Work was OK... Biggest drama was working out what to wear. No change... Was ordered to do only 6 hours until someone from Occupation Health sees me....
These people are so unorganised...

Anyway, How are you? You sound chirpy We have had a shit time of it lately.
My freindhas just had her baby, a little girl...she was due about the same time as I was with beanie 6. I have been OK with it all. I made a point of seeing her throughout the pregnancy cos I know how bad she felt for me ...I am truly really pleased for her

Good Luck with your call...

CALL ?

I am loosing it......... I meant visit........... to hospital

lol

Im doing good, got a sick DS2 at the min and DS1 is driving me mad, he may well be glued to me

My night out friday did me the world of good and made me feel more like me rather than a hole punch

Glad work was ok...

Know how you feel about your friend, I have a friend whos trying to get pregnant at the moment for surrogacy, i think shes doing a wonderful thing but I feel sad that she wont speak to me about it and I know its because she thinks she will upset me