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Mumsnet Discussions: Allergies : ? coeliacs - got appt tomorrow with gastro specialist (12 messages)
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Contact the poster Contact mumsnet about this post By NaughtyNigel on Mon 28-Apr-08 20:02:08
at bristol childrens hospital. am feeling a bit wierd and nervous.
do you think it will be the same format as 'normal' children outpatient appointment at local hospital was? what do you think the next step will be?
Contact the poster Contact mumsnet about this post By madcol on Mon 28-Apr-08 21:16:07
Have they had coeliac blood test yet?
Contact the poster Contact mumsnet about this post By NaughtyNigel on Mon 28-Apr-08 21:31:46
yes.
in a nutshell....
TTg negative. Total Iga low.
abdo pain and nausea for 7 months now. ocasional constipation. v clingy and moody/depressed. and lots of other stuff. DD is just 10. eats a very limited diet of mostly bread.
Contact the poster See this person's profile Contact mumsnet about this post By schilke on Tue 29-Apr-08 09:41:30
Hope it goes well.

I got ridiculously nervous for ds2's appt a couple of weeks ago with allergy doc.... ds2 was fine!
Contact the poster Contact mumsnet about this post By madcol on Tue 29-Apr-08 18:11:47
Do you know the anti-enodmysial Ab result?
Contact the poster Contact mumsnet about this post By NaughtyNigella on Tue 29-Apr-08 18:18:11
Gastro bod thinks it is 'gastritis'. Has prescribed another course of omeprazole (previous dr did give her only a weeks worth. this dose is higher and she is to take them longer)
Also took more blood to recheck Ttg, Iga and Ige. The Ige wasn't tested before.
So we wait for another 3 months by which time this will have been going on nearly a year.
Contact the poster See this person's profile Contact mumsnet about this post By lackaDAISYcal on Tue 29-Apr-08 18:21:29
when i had my diagnosis four years ago, the initial consultant appointment was to discuss symptoms and to arrange the biopsy and colonoscopy I was having done at the same time. They took more bloods as well at that appointment as well iirc, but can't remember what for. I assume your DD's appointment will be similar.
Contact the poster Contact mumsnet about this post By NaughtyNigella on Tue 29-Apr-08 18:30:03
No no mention of endoscopy. I'm such a wuss i didn't ask about it so am left to moan about it here
Contact the poster See this person's profile Contact mumsnet about this post By lackaDAISYcal on Tue 29-Apr-08 19:37:25
if they were doing the endoscopy at this appointment you'd have been told that she should be nil by mouth, in case she vomits when they put the tube down. This will probably be so they can take (probably yet another) history from you and explain any forthcoming procedures.

Try not to worry; kids are much more resilient than us at these things; your DD will be fine.

I hope you get some answers soon.
Contact the poster See this person's profile Contact mumsnet about this post By lackaDAISYcal on Wed 30-Apr-08 13:08:09
hope things have gone OK NN. Let us know how you got on today smile
Contact the poster Contact mumsnet about this post By ditavonteesed on Mon 05-May-08 08:06:03
Naughty, how did you get on?
Contact the poster Contact mumsnet about this post By flopsy1 on Sat 24-May-08 00:09:30
dont know if this will help friends little the same negative for coeliac diagnosed with giardia bug in bowel treated with antibiotics follwing ct scan uss now gaining weight and thriving


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