Mumsnet members get a 10% discount from Boden (including free returns and free delivery), The White Company, sweaty Betty, Luxury Family Hotels, JoJo Maman Bebe, Siblu, Blooming Marvellous, GLTC, Bump to 3 (the official online shop for Grobags) and more. Click here for more info Join mumsnet here.
Note Please be aware that our special needs area is not a substitute for expert advice. Whilst many Mumsnet members have a specialist knowledge of special needs, if they post here they are posting as members, not experts. There are, however, lots of organisations that can help those who have children with special needs, so if
you feel you need some expert help, please click here for some
suggestions of who to contact. If you have come across an organisation that you have found helpful, please email their web
address to our webguide manager here. Many thanks, Mumsnet Towers.
To cut a very long story short, DS2 has major problems!
He lost his brother when he was 3 years old and his personality changed. He became moody, aggressive and violent. This has caused major problems with school, he is constantly in detention for fighting, he's been threatened with exclusion and now the head wants me to take him home every lunch time.
This is not practical as DD has DDH and we are struggling with that, she also has other problems and trying to fit in around hospital apmts is difficult.
As well as loosing his brother DS2 lost his grandparents last summer within weeks of each other and he has a disabled baby sister. Me and his dad divorced when DS2 was 2 and he's moved house 3 times!
He's in year 3 now and every report and parents eve has been the same. Accademically, he's top of the class, exceeding national expectations, but for listening skills, behaviour and social developement, he's well below national averages.
Since reception, he has been placed in a 'friendship' group, which is basically a group of 5 boys, all with similar behavioural problems to DS2. Although none of them have been threatened with exclusion.
I have often questioned why these boys with Social developement issues have been taken away from the rest of their peers at lunchtimes... how can they learn to interact and socialise if they are being singled out?
Now the head is asking me to completely remove him from school at lunchtimes because he has thumped two kids this week.
DS2 isn't a nasty child all the time, he seems to have a split personality, he's been under a psychologist - but didn't really get anywhere and in year 1 the teacher was watching him closely to see if there was a trigger for his violent outbursts. She said she saw his facial expression change and he just 'flipped'.
He can be the most gentle, loving, affectionate child one minute but without warning, he can just lash out. He says he wants to be good and doesn't know why he does it. He also has major difficulties in large crowds, he runs around, hiding behind things, he can't walk normally, he almost jumps and skips along. He has very poor concentration and gets very emotional. He actually woke up crying one morning last week but didn't know why.
I just don't know where to turn. The school just seem to want him out the way, rather than try to help him and the GP didn't seem interested when I mentioned it to him.
I just feel like it's all closing in on me, DH works away a lot, DD is in a hip spica and needs a lot of my time and attention, we are facing the possiblilty she may not walk due to other problems and DS2 seems to be getting worse, the school don't want to help - just get rid of him.
God, poor you Loopylena - you have got a whole lot on your plate!! Has he been assessed for ADHD and aspergers -not saying I think that he is necessarily in that area, but what you say about him not liking crowds could be similar to aspergers, plus might the whole crowded school experience be too much for him and that's why he lashes out? I know some people don't want their kid to have a label, but in fact in some circumstances it would actually help as the school can't just treat him and discipline him as they would a "normal" child if he is found to have SEN. It would actually go against the Disability Discrimination act to punish him as if he's just naughty! I have an ASD son of 5 who used to hit, but I stopped him doing it by having an instant, immediate and unpleasant santion - in my case, hairwash was the sanction as he hated it. Could you use no tv or no computer time, or he loses a book he loves? I'm sure you've tried all that though, so really I'm just babbling now but I'm giving you big hugs!
That's interesting... DS2 also hates hairwashing...or infact any kind of personal hygiene!!! If i try to cut his fingernails you'd think I has killing him - and haircuts - OMG! The whole town must hear him scream!!!! I have tried all the usual 'bans' like his DS, the PC, TV, but he doesn't seem that bothered. He's been asking for his DS back but I keep saying he can have it when he proves he can behave at school - to which he just says OH, OK.
He has never been assessed - where do I go for that? Would it be through the GP?
Yes, via the GP. Ask to be referred to a paediatrician for assessment for aspergers. Does he have any language oddities - eg is he over-precise or literal in how he talks? Or is he impulsive and always on the go? Did the psychologist he saw say anything?
Not sure about the language, although he takes other peoples comments very literally and to heart and gets upset easily. He can also be very repetitive and I have to tell him to stop saying something over and over again. He is always on the go, never able to keep still, fidgets and fiddles with things constantly, psychologist never really did much! DS was under her for 18 months and in that time she mainly spoke to me and his dad and the school, it never really went anywhere.
you can google aspergers on the net - but basically, they have some social problems and some problems understanding subtle social situations or unclear language. They can sometimes have obsessive or repetitive behaviours or interests which they will go on about beyond the point at which others are interested (mind you, that could be quite a few boys/men!). My boy screams the neighbourhood down for haircut and nails too (though funnily enough he is just about ok with fingernails, but much much worse with toenails. Who knows why?!). Perhaps your boy is lashing out because someone is getting into his space and he can't cope any other way, as the haircut etc could point to some sensory problems. Autism and aspergers are spectrum conditions, which means you can have it very very mildly or severely, or anything in between. I suddenley realised the other day that my DH , although otherwise not aspergers or autistic, absolutely hates having his head touched and also lines up the remote controls every night in the same pattern! if you google aspergers and it seems to fit, or ADHD, go in armed with what you've found out so the GP won't fob you off. Good luck!
I don't know if it will help you, but when we visited our gp about our son I had written down a list of all the 'odd' things, naughty behaviour, social problems etc. It really helped because I did it one night when I was at the end of my tether and added to it over the next few days when I remembered other bits. I then just handed it to our GP and let him read through it. He said that individually nothing obvious jumped out at him, but with so many things listed he agreed that we needed to get my son tested. With all thats happened during your sons life, there is chance they will just try and fob you off, but if you think there might be more to it then that stick up for your son & yourself and insist on an assessment. Good luck
Your experience sounds somewhat similar to mine. My ds like yours at that age and very unhappy at school. he was excluded in year 7 and then I sought diagnosis, and recieved dx of aspergers after about 6 months. Same with fingernails and haircuts amongst other things. Now he just has very long fingernails as at thirteen he wont let me near them. It is a sensory thing adn interesting that at his age, he can now explain some of his difficulties, in this case he says he cant stand the feel of anything by his fingertips so having long nails protects him.
Anyway, having gone off the point a little, We are going to start a social skills group for parents and children at CAMHS next week, this is because (and you may have found with your ds, as I have) children with AS can Learn some social conventions that donot come naturally. For example ds never showed sympathy if other hurt themselves but learned to once I explained to him literally what to say in that situation. So this may be why your ds is in the group at school, even though I would also question the frequency of the group if he is not getting an opportunity to practise these skills.
Best of luck, And Im sure your ds also has lots of strengths as you mention.