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No, generally absences. She has had 3 tonic clonic seizures, which required ambulances twice, but these are out of the ordinary pattern. (we have Midazolam to administer if she does not come out of a seizure after 5 minutes.). DD1 has CP, hydrocephalus as well as epiliepsy. Take care of yourself FioFio. I know it is a worry.
are the breakthrough seizures tonic clonic ones? and does your dd have a diagnosis?
I think I was a bit in denial yesterday when I was blaming it on the drugs and then reduced it. OH well at least i have a nice sensible paed! DD is 8 and has a sev GDD (undiagnosed) and microcephaly. Her paed was saying this morning that epilepsy can sometimes show its face around this age or get a bit worse because of the girls hormones It does feel like another thing to worry about, but a worse one iykwim
dd1 is 7, and has been on anticonvulsants over 4 years. Started on sodium valp, then added tegretol, then removed tegretol, then added lamptrigine, then removed lamotrigine (had really nasty reaction to that one) so dd1 always remained on sodium valproate, and now JUST has sodium valproate. Consultant was trying to mix others in to see if the breakthrough seizures could be alleviated or reduced, but these other 2 drugs were not good for my daughter. The epilepsy terrifies me too......
Does sound like a seizure to me too. Good news though is that sodium valporate is supposed to be one of the more effective anticonvulsants as far as absence seizures are concerned so hopefully increasing it will help.
I think I tend to agree with the Paed, and these sound quite like the type my dd1 has. She too is on sodium valproate, but has breakthrough seizures. Hope you and dd are OK x
dd is on medication (sodium valporate) now and we are gradually increasing it. Yesterday she fell in pe and couldnt stand up and went really vacant. the school rang me and I went to pick her up as they seemed quite concerned it was seizure. Then she had another really vacant episode (whilst I was on the way) and they couldnt get her to respond but when she came out of it she carried on as normal again. Then later on at home she had another and I couldnt get her to respond.
Foolishly I reduced her meds again (gut reaction) as I felt it may be the medication but i just spoke to her paed and she felt it was cluster of smaller seizures and the meds will have helped to control her not having a larger one like last time. I now agree and we are gradually increasing the meds again....
what does everyone else think? I need a bit of reassurance (for a change eh?)
and then reduced it. OH well at least i have a nice sensible paed! DD is 8 and has a sev GDD (undiagnosed) and microcephaly. Her paed was saying this morning that epilepsy can sometimes show its face around this age or get a bit worse because of the girls hormones
It does feel like another thing to worry about, but a worse one iykwim 
) 
