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Just a quick note to those of you who remember my beautiful little Harry Bear(www.harrysjourney.co.uk). He passed away peacefully on tuesday 29th in his mummy and daddys arms. He had battled for 5yrs but was very ill at xmas and it left his exhausted. He just couldnt fight anymore.
I am new to mumsnet,but just wanted to say how sorry I am to hear your sad news. My DH's brother had epilepsy and although he isn't with us any longer, for a different reason, it is a subject close to our hearts.
I read your website earlier today and it was so lovely, your DS was such a little fighter, and very very special, you must be very proud. I'm so srry for your loss i can't even begin to imagine what you are going through. thinking of you and family